By Alison Feller, as told to Candy Schulman
When I was 7, I was on a family vacation, living my best life. Or so I thought. I wasnít sick Ė until I was. There were no symptoms that indicated Crohnís was coming. I was losing weight, but I was a super active kid. Suddenly I started throwing up a lot. I had a fever. Back home, my dad took me to the hospital for all sorts of tests. A specialist did an endoscopy and saw all the inflammation in my digestive tract.
My family didnít know how to navigate my Crohnís diagnosis. Weíd never heard of Crohnís and learned it would be a chronic illness Iíd have forever. I thought my parents would figure it out. All I cared about was getting better and going back to dance class. As long as I could dance, I was happy.
Iím lucky to have two wonderful, supportive parents. We met with doctors, and they put me on oral prednisone to stop that flare. In early adulthood I had to manage my illness, learn to advocate for myself, call doctors, get authorizations, and push for what I needed in terms of treatment. Crohnís would flare once a year. Steroids calmed it down. When I was older, it was harder to treat. I was put on biologic medications. Over the years, Iíve been on a large cocktail of medications, trying to find that perfect one.
I started running during a healthy time. I fell in love with it! I was out the door for my first run, which lasted four lamp posts. Eventually I set my sights on running the full mile to the dog park. Three months later, my first race was a 4 miler in Central Park. Iíve since completed six marathons, a dozen half marathons, and many shorter races.
Doing My Best
Living in New York, I had a dream job as editor-in-chief of Dance Spirit magazine. I was the sickest Iíd ever been and had to go on medical leave, which lasted 2 years. I couldnít even leave home. I was depressed, not myself. I was in the bathroom up to 40 times a day, so I had to be near a bathroom at all times. Itís not glamorous or fun to talk about. But itís my life. I do the best I can on every day.
Crohnís caused me to make a major change. I had to make decisions best for me, my family, and my health. I eliminated commuting to an office and someone dictating how many sick days I got. I needed freedom and flexibility. Sometimes I had to do my work in the bathroom. I could do that if I worked for myself.
When Iím flaring sometimes, I canít run at all. I always plan runs around restrooms, bushes, or woods. Living in a city was challenging, so I moved to New Hampshire, surrounded by woods. One of these days I’m going to run into the woods and find another person with Crohnís there in an awkward situation.When Iím flaring sometimes, I canít run at all. I always plan runs around restrooms, bushes, or woods. Living in a city was challenging, so I moved to New Hampshire, surrounded by woods. One of these days I’m going to run into the woods and find another person with Crohnís there in an awkward situation.
My quality of life with Crohnís is better here. Running is even more enjoyable now that I donít have to worry. People like running with me because I can tell them where all the bathrooms are. Iíve learned to adapt. I will always be a runner, even on days when I canít run. I bought a treadmill to help me when Iím sick.
Running is my favorite thing, so I made a career out of it on my podcast, ďAli On The Run.Ē Every week I interview runners about why they love the sport, how running makes them feel, and what they love doing when theyíre not on the run.
My flares vary but come at least once a year. They can last a couple of weeks or a year. There is no consistency. I run however much I feel like running. If I see a race that I want to run, I donít register way in advance in case I have to cancel.
My advice is to do your best on any given day. Only you get to decide what your best is. Lower your expectations and let yourself be pleasantly surprised. Donít beat yourself up on hard days because there will be hard days. This disease has made me so much stronger. Iím resilient. I can handle challenging things. The Crohnís community is very supportive. Our conversations are really powerful. It makes us feel less alone.
Alison Feller is a podcaster, freelance writer and editor, runner, marathoner, and proud mom to Annie. Diagnosed with Crohnís disease when she was 7 years old, she has written about running and Crohnís for leading fitness and health magazines. Her weekly podcast, ďAli on the Run,Ē is the countryís No. 1-rated podcast on running.